Phil Gee was first diagnosed with Parkinson’s Disease (PD) in 2015, one year after retiring from a very successful thirty-three-year career holding a number of engineering, manufacturing and supply chain senior level positions.
Since his PD diagnosis, Phil and his wife, Julia (who first met in the 1st grade & have been married for 36 years), have become active advocates for others living with PD and their care partners. In 2017, they moved from metro Atlanta to Hilton Head, and immediately joined the local Rock Steady Boxing program, an intensive boxing/exercise program that has proven to slow the progression of Parkinson’s Disease, which is incurable.
They began to look throughout the South Carolina Lowcountry and didn’t really see other Black people who said that they had PD. That started their journey to become PD advocates, helping others with PD and their care partners to learn more about PD and how to live a better life with the disease.
Phil has served four years on the Parkinson’s Foundation People with Parkinson’s Advisory Council. Julia is currently on the Advisory Board for the Foundation’s Carolina Chapter, and chairs their local PD Support & PD Care Partner Support groups. Together they have participated as panelists and speakers in a number of PD symposiums, co-chaired multiple Parkinson’s Foundation Moving Day Fundraisers, and participated in several pharmaceutical focus groups/patient panels.
Today, they are active with the Special Interest Group – Black Diaspora steering committee working to drive development of solutions to mitigate health disparities in the Black Community with a focus on issues of the Black PD Community.
Evelyn Stevens, MPH, is the Senior Director of Community Engagement at the Parkinson's Foundation since September 2022. Prior to this role, Evelyn held positions as Clinical Research Project Manager, Clinical Research Coordinator III, and Clinical Research Coordinator II at the Children's Hospital of Philadelphia in the Division of Hematology and Comprehensive Sickle Cell Center. Before that, Evelyn worked as a Health Educator and Clinical Research Coordinator at Penn Medicine's Raymond and Ruth Perelman Center for Advanced Medicine in the Abramson Cancer Center. Evelyn holds a Master of Public Health (M.P.H.) in Epidemiology and Biostatistics from Temple University and a Bachelor of Arts in Psychology: Bio-Psychosocial Health from Lincoln University.